A young teen with Fetal Alcohol Effects challenges the world to peer inside her life and brain. Through her own writings the reader is taken on a life changing journey that will impact their thinking about how to help and understand children with brain damage due to Fetal Alcohol.
An incredible resource on FAS, from a family's perspective
By Laura S. Heiman
- May 2, 2001
This book tells the story of a girl who suffers from FAS, and her journey with her adoptive parents towards education and independence. One of the best handbooks I've read on the subject; short, but packed with information, thorough lists of resources, homeschool supplies that worked, etc., and, most valuable of all, a family's perspective on the trials and successes of dealing with this syndrome. Liz, the daughter, was adopted soon after birth, and couldn't stand being touched until nearly her 10th year. Her parents homeschooled her from fourth grade on, after finding that the schools couldn't really give their daughter the help she needed. There are segments written by Liz throughout the book, written in her own hand, about her struggles, difficulties, and successes. This book is hard to find in libraries, but it is, in its own way, as important and valuable as Streissguth's books, and far more immediate and touching. Read this!!
If we only saw this book sooner
By boo boo
- October 1, 2004
Your book was the missing piece of information for our adopted daughter who's birthmom is an alcoholic. As a nurse and a doctor we were unable to find what was wrong with our daughter-no other professionals we took her to knew what was wrong. Every thing written in this book could have been written about our daughter and if we had gotten this information sooner we would have had a different point of view for her behavior and learning problems. We were not taught about FAS/FAE in nursing/medical school. This information needs to be learned at that level in order to assist with an early diagnosis and life planning for the child to avoid what we went through- 15 different schools in 10 years.
Must Read for parents who adopt and for professionals who work with kids
By Jane Hinrichs "Artist and Writer"
- February 27, 2006
This book is fantastic! It explains Fetal Alcohol Syndrome/Effects, and gives the reader understanding and tools to use to work with people who have FAS/E and also how to love and accept them and appreciate them as they are. I have an adopted son with FAE and when I first realized he had this I was very discouraged because all I had heard about FAS/E was so negative. I didn't know if I would be successful being the mom he needed me to be. This book gave me such insight. It also showed me that some of what I have dealt with with my son is normal and it is okay. It is a book that celebrates life in all its forms -- even the challenging form FAS/E creates. Thank you to Liz and Jodee Kulp for sharing their life with us.