Getting Better:: My Journey through Transverse Myelitis and Lessons for Health Care Professionals, Patients and Families
In July 2010 Keith Launchbury, a business consultant, experienced a severe band of pain across his chest, and within 24 hours was totally paralyzed from the middle of his chest to his toes. He was diagnosed with Transverse Myelitis, an auto immune disorder which causes the body's natural immune system to attack the spinal cord. All of this happened nearly 3000 miles from home, while he and his wife were traveling on business. For the next 42 days they moved through three hospitals as neurologists, immunologists, internists, hospitalists, nurses and other health care professionals tried to bring about his recovery. Through this journey Keith and his wife, also a professional business consultant, recognized many opportunities for health care professionals to improve health care in America, and for patients and their families to be better advocates for themselves and their loved ones. This book chronicles this journey as well as the lessons they learned which should be adopted by all health care professionals and institutions, as well as helpful lessons for patients and their families to ensure excellent care.
Personal account great for information
By JC - February 5, 2011
For anyone struggling with transverse myelitis or close to someone who is, this book can be an indispensable and valuable source of information. Reliable information about transverse myelitis seems to be the one exception in our otherwise nearly infinite Age of Information. TM is a little-researched and little-understood condition. Because it is so rare, many health care professionals know little about it, making diagnosis and treatment an infuriating and stressful process for the patient. Having such a detailed but accessible account of one person's experience with TM may be enough to validate the experience of another sufferer and to provide a launching point for further information acquisition. Although individual experience with TM seems to be overwhelmingly unique, it is possible to find threads of commonality with the experience Launchbury relates, which can help facilitate productive dialogue between the patient and his medical team. Keith Launchbury's experience as detailed in... read more
What Everybody Should Know!!!!!
By Lady Eagle - April 26, 2011
This is one book that everyone should read. Someone passed this book on to me, and I told my son that if I was ever in the hospital, he had to read this book, or call Claire to come take care of me. Everyone should know this story in order to know how to be their own best advocate in a hospital and even apply the information to all levels of care. The lessons in the back should make up a whole new book on being your own medical advocate, so I am waiting for them to write this one and hope they do it soon! READ IT!!!!!
Review of "Getting Better: My Journey Through Transverse Myelitis and Lessons for Health Care Professionals, Patients, Families
By James D. Reeds - March 30, 2011
One of the most effective writing techniques used to help make complex matters more understandable and memorable is through the art of storytelling. What we have in Keith Launchbury and Claire Bloom's book, "Getting Better: My Journey through Transverse Myelitis and Lessons for Health Care Professionals, Patients and Families," is a riveting first-person story written by two dear friends and colleagues and it reads as a day-by-day collection of personal journal entries, as gripping as any spy thriller. It tells of Keith Launchbury's encounter and on-going recovery from transverse myelitis - an autoimmune disorder that causes the body's natural immune system to attack the spinal cord.
Keith and Claire are husband and wife, and they found themselves in San Francisco last summer to conduct an on-site education program for a client. While Keith and Claire were deplaning at San Francisco International Airport, Keith was stricken with what was ultimately diagnosed as TM... read more